A Young Adult Panel (YAP) of service users with Type 1 Diabetes (T1D) was formed to contribute to the development of an effective intervention called D1 Now. It centres on patient-centred care for young people with diabetes.
Engaged Research Partners
Galway University Hospitals, Jigsaw Galway and Young Adult Panel
Engagement method or activity
- Public and patient involvement (co-design and co-production).
- Systematic Review.
- Intervention development using Behaviour Change Wheel and Medical Research Council’s framework for developing and evaluating complex interventions.
- YAP members participated in different stages of the research process:
- They were represented on the research study steering group and attended research meetings.
- They developed research materials (topic guides for interviews and focus groups, Participant Consent Forms), reviewed and interpreted research findings and helped develop the on-line platform to enhance engagement between young adults and their diabetes healthcare providers.
- They contributed to an international consensus conference on health services delivery for young adults with T1D, were keynote speakers at three national conferences and wrote specific sections of a further grant application to test out the new intervention.
Project outputs and outcomes
The outputs are as follows:
- The D1 Now intervention protocol for young adults living with T1D.
- Peer reviewed journal articles, conference participation and associated media coverage.
The outcomes are as follows:
- As a direct result of the YAP, a meaningful dialogue has opened up between healthcare providers and young adults within D1 Now research team. Their involvement has led to a better understanding of what needs to be achieved in order to improve health service delivery.
- They have been active members in co-designing a health behaviour change intervention to improve engagement between young adults with T1D and healthcare providers, which will be evaluated in future research.
- The successful trial of a stakeholder model to develop effective interventions for young adults living with T1D.
Longer term anticipated areas for Impact
- Health and Well-Being
- Professional and Public Services
- Policy and/ or Product Development
- Capacity Building
Health Research Board Health Research Award
Higher Education Institution:
- Prof Sean Dinneen (NUI Galway)
- Mary Clare O’Hara (HSE)