A patient centred approach to improving care

Health and Well-being

A patient centred approach to improving care

Project Synopsis

A Young Adult Panel (YAP) of service users with Type 1 Diabetes (T1D) was formed to contribute to the development of an effective intervention called D1 Now. It centres on patient-centred care for young people with diabetes.

Galway University Hospitals, Jigsaw Galway and Young Adult Panel

  • Public and patient involvement (co-design and co-production).
  • Systematic Review.
  • Intervention development using Behaviour Change Wheel and Medical Research Council’s framework for developing and evaluating complex interventions.
  • YAP members participated in different stages of the research process:
    • They were represented on the research study steering group and attended research meetings.
    • They developed research materials (topic guides for interviews and focus groups, Participant Consent Forms), reviewed and interpreted research findings and helped develop the on-line platform to enhance engagement between young adults and their diabetes healthcare providers.
    • They contributed to an international consensus conference on health services delivery for young adults with T1D, were keynote speakers at three national conferences and wrote specific sections of a further grant application to test out the new intervention.

The outputs are as follows:

  • The D1 Now intervention protocol for young adults living with T1D.
  • Peer reviewed journal articles, conference participation and associated media coverage.

The outcomes are as follows:

  • As a direct result of the YAP, a meaningful dialogue has opened up between healthcare providers and young adults within D1 Now research team. Their involvement has led to a better understanding of what needs to be achieved in order to improve health service delivery.
  • They have been active members in co-designing a health behaviour change intervention to improve engagement between young adults with T1D and healthcare providers, which will be evaluated in future research.
  • The successful trial of a stakeholder model to develop effective interventions for young adults living with T1D.
  • Health and Well-Being
  • Professional and Public Services
  • Policy and/ or Product Development
  • Capacity Building
Funding Source:

Health Research Board Health Research Award

Higher Education Institution:

NUI Galway

Academic Contact: